Independent global EDS information & community project · working titleMedical information policy →
Trust & transparency

Medical disclaimer

This website provides general education, research discovery, community information and lived experience relating to Ehlers-Danlos syndromes and hypermobility. It does not provide medical advice, diagnosis, treatment or emergency care.

Do not use site content to start, stop or change treatment without discussing it with an appropriately qualified healthcare professional. Symptoms associated with EDS can also have other causes. If you believe you are experiencing a medical emergency, contact the emergency service in your country.

Personal stories are clearly identified and should not be treated as evidence that the same experience, treatment or outcome will apply to another person.