Understand EDS without needing twelve browser tabs.
Plain-language guides built from recognised medical and patient-organisation sources, with visible review dates and links back to the source.
What are the Ehlers-Danlos syndromes?
A plain-English introduction to a group of inherited connective tissue disorders.
hEDS diagnosis: why there is no single test
hEDS is currently diagnosed clinically rather than through a confirmed diagnostic genetic test.
Fatigue can be one of the hardest symptoms to explain
Severe tiredness is commonly reported in hEDS, but it can have more than one cause.
Joint pain, instability, subluxations and dislocations
Hypermobility is not simply being flexible — for some people it comes with instability and pain.
Skin, bruising and wound healing
Skin features differ by EDS type, and can be much more significant in some types than others.
Dysautonomia and orthostatic symptoms
Some people with EDS or HSD also experience symptoms such as dizziness, palpitations or faintness when upright.
Sleep and the cycle of pain and fatigue
Poor sleep can amplify fatigue, concentration problems and pain.
Braces, splints and mobility aids are tools, not failures
The right support can reduce strain and make participation possible.
Children and young people with symptomatic hypermobility
Growing bodies need age-appropriate assessment rather than simply applying adult labels.
EDS knowledge is changing — and the site should show that
The next major diagnostic framework is due in December 2026, followed by care guidance in 2027.